Thank you so much for your interest in our EB Priorities survey. The survey is now closed.

What happens next?

We will look at all the questions submitted and group them into themes. These will then become research questions.

We will check to see what questions have already been answered by research.

The unanswered questions will go on a list. Then we will run another online survey asking everyone to select the questions they think are the most important to answer. Please look out for the second survey so everyone has a voice in helping identify the big unanswered questions about EB